Ok - warning, this is mostly for my medical notes, but as usual, you never know when it might be useful to someone else! :) Plus, I am finding going back in my own blog to be very helpful in tracking how Bug's symptoms have played out over the last 1.5 years.
First off, Bug missed her stomach medication on the 6th. She had it again on the 7th, and has been on it normally since. Starting on the 6th she started having sleeping problems because of her tummy hurting. I figured it was reflux, but wasn't sure if it might be stress due to her upcoming GI appointment.
The stomach problems have not stopped since, although I personally noticed that she was falling asleep more easily again around the 14th. Her sleeping patterns have not returned to normal, she is still taking a long time to get to sleep but that would make it around 11 vs the 2:00am that was happening the week before.
We saw our GI Tuesday and Bug did AWESOME! She had no anxiety during the appointment, which was such a relief to me. We didn't do anything invasive, but if you'll recall she wouldn't even get her weight taken in the fall. So this was a huge step forward for her. :)
Since seeing the GI, she is still complaining about her stomach hurting and is still having problems falling asleep. In the mornings she is telling me she hasn't been sleeping at night, even though I know she has. As this continues, I am left scratching my head as to why she is so off right now. Looking back at last years blog this was the really bad time for us too. What does that mean? I haven't figured it out yet.
Also worth noting is that last night she was laying down watching a movie in her brothers room and her hands broke out in a rash. Similar to what happens on her mouth and legs. She was not eating at the time, but had popcorn about an hour before. The rash was not located anywhere else on her body. It was painful but not itchy. I did take a picture but haven't uploaded it yet. By morning the rash was faded and not hurting like it had been the night before.
In addition, today we started her on Zantac right before bed. It was her first dose, but the GI said that it acts immediately. If that's the case I'm not too hopeful since she was still up at 11:00 with stomach problems. I'll give a full GI update in my next post, I just don't have the energy to do it tonight. But the gist of it is that if adding this doesn't work, surgery is her only option. Talk about stressful!!!!!!!!
Anyway, that's all I have in me for tonight. :) More later!