You may or may not know this, but May is National Ehlers-Danlos Awareness Month. This year I decided that it would be a great idea to support Bug by joining in the Arthritis Walk. I looked at the groups in Iowa and found that there was one walking on May 3rd, and so I decided that I was going to do it!
I talked to "Bug" and she is going to walk with me. I also have a good friend who said she would join us. At that point I thought "hey - I should form a team"! So I did - and we're inviting parents and children.
I am hopeful that we will get a nice group together, but since the walk is about 2 hours away I'm not sure. I'm going to cross my fingers though, and I've decided to hit the pavement hard to seek out donations. I am hoping that this is where living in a small town will really help, I don't think anyone else will be doing this walk. Plus, we know a ton of people and I'm hoping they will be willing to make a small donation in honor of Bug. I guess we'll see!
If you are interested in making a donation to the National Arthritis Foundation in honor of Bug and our walk, you may do so by clicking here. I know a lot of people who read this are struggling already and I don't want you to feel you have to donate. I just thought it would be silly to not at least link here in case someone can and wants to donate.
In case you are wondering why we are walking for Arthritis, it's because EDS actually is considered an arthritic condition. While I'd love to walk for EDNF and have all of the funds go directly to Ehlers-Danlos Syndrome, EDNF just isn't at that point yet. Walking with the Arthritis Foundation will support EDS as well as other Arthritic Conditions, and it will allow Bug to feel empowered as well as allow her to meet even more "kids like her". (that's what she always says) I am hoping to make shirts for our team to wear, but it will depend on how many people walk with us. (more people = more money for shirts) Bug and I will wear them, and they will mention EDS. I am hoping someone will take notice and we can attract some interest in Ehlers-Danlos while there.
Thanks for reading - and you might consider looking and seeing if there is a walk happening sometime soon in your own area. :)
Friday, April 04, 2008 | | 3 Comments