Our Journey with Ehlers-Danlos Syndrome

Learn about Ehlers-Danlos Syndrome in children, and how it effects our family.

Saturday, August 22, 2009

Bug Update

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I promised to do a Bug update, so here goes! Bug has been having stomach pain since August 9th. It has been severe enough for her to invent ...
1 comment:
Friday, August 21, 2009

OMG - Ring Spints Fricken ROCK!

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Ok folks, I am straying from my normal talk about Bug, and yes, there is plenty to talk about. Tonight, I am hopping on just to say somethin...
2 comments:
Thursday, August 13, 2009

Support an EDS Kid!

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Hi everyone! One of Bugs EDS friends (in fact, her only EDS friend) is in a contest for a local auto dealership. She sang and is in the top ...
3 comments:
Thursday, July 23, 2009

Playing Catchup - A Monthly Update

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I am going to be lazy and just post here what I sent to one of our EDS support groups. I am just not feeling like writing it all over again ...
1 comment:
Thursday, July 9, 2009

Apparently my daughter is a lost cause...

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At least Blue Cross, Blue Shield seems to believe so. I am bitter to say the least. I had written our PT a long list of questions after our ...
5 comments:
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