Our Journey with Ehlers-Danlos Syndrome

Learn about Ehlers-Danlos Syndrome in children, and how it effects our family.

Friday, December 18, 2009

Long Overdue Update

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I'd love to say that I haven't updated because things are going well, but that just isn't true. This has been a hard fall for Bu...
4 comments:
Thursday, September 24, 2009

The Day Has Come...

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I knew it would, but I didn't know when. I also didn't know it would be so obvious, or how it is that I under-estimated Bug so much....
4 comments:
Saturday, August 22, 2009

Bug Update

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I promised to do a Bug update, so here goes! Bug has been having stomach pain since August 9th. It has been severe enough for her to invent ...
1 comment:
Friday, August 21, 2009

OMG - Ring Spints Fricken ROCK!

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Ok folks, I am straying from my normal talk about Bug, and yes, there is plenty to talk about. Tonight, I am hopping on just to say somethin...
2 comments:
Thursday, August 13, 2009

Support an EDS Kid!

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Hi everyone! One of Bugs EDS friends (in fact, her only EDS friend) is in a contest for a local auto dealership. She sang and is in the top ...
3 comments:
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