Our Journey with Ehlers-Danlos Syndrome

Learn about Ehlers-Danlos Syndrome in children, and how it effects our family.

Thursday, July 17, 2008

Feeling Sorry for Yourself

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Today started out as a great day, Bug was going to go window shopping with Grandma and I to show us what she was wanting for her birthday. I...
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Tuesday, July 15, 2008

Summer Update

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I thought I'd pop in and give a small update since it's been a couple of weeks. Things are moving along nicely for summer. We've...
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Friday, June 27, 2008

Summer Progress on Dragon Naturally Speaking

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It's hard to believe that school has been out for over three weeks, it seems like we just finished! During that time we've been work...
Thursday, June 12, 2008

Our Ehlers-Danlos Article - Published!

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Ok ladies and gentlemen - drum roll please!!! Here is the article that appeared on the FRONT PAGE of our local paper, complete with two awe...
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Wednesday, June 11, 2008

Newspaper, Masters Papers, what next?

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Today was quite a day! After posting to Girl, Dislocated (my favorite blog) last night that I'd given up on our Ehlers - Danlos articl...
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