Our Journey with Ehlers-Danlos Syndrome

Ok - warning, this is mostly for my medical notes, but as usual, you never know when it might be useful to someone else! :) Plus, I am find...

This is just a really quick post to share the picture I took of Bug's Silver Ring Splints ( SIRIS ) . Keep in mind she is just 7 - so th...

As usual, it's been awhile since I've posted. We had a great Christmas spending it with Grandma and Papa. Both of the kids had fun, ...

The one (and only) good thing I can say about this burnout mode is that it is me who's burned out, not Bug. ;) That in and of itself is ...

First of all, I'm going to do what I'm soooo good at, backtrack a bit! After my last post about everything being all set to go I go...