Our Journey with Ehlers-Danlos Syndrome

My daughter (Bug) has had an iBook at her desk for almost a week now. She really seems to be taking to it and enjoying it. The great thing ...

Now that I've had my rant about ABC, I'm trying to get my focus back on what is really important, my family. So here's a little ...

I can't put into words how upset I am about ABC's Medical Mysteries show that had a segment on Ehlers - Danlos syndrome this week. ...

List of updates since my last post.... First off, tomorrow night is the long awaited (not really, but it feels that way!) airing of Ehlers -...

After a pretty non-eventful week (minus a bit more fatigue than normal) we had stomach problems again, to the point where my daughter made s...