Our Journey with Ehlers-Danlos Syndrome

I just want to say that I am so happy that after winter break we have had two short weeks! It makes the adjustment back so much better. As I...

Since I've spoken before about how hard finding "adaptive clothing" for children larger than toddler sizes I thought I'd p...

A Mother and her Son on one of the online EDS support groups were recently filmed for ABC's Medical Mysteries show. I am so excited, as ...

I know those of you reading this blog who do not have Ehlers-Danlos Syndrome yourself might have a hard time really understanding what it is...

Wow - it's been almost a month since my last post! The holidays have really made time fly by. Not much to report, my daughter had a wond...