Our Journey with Ehlers-Danlos Syndrome

I don't have my copy of the final IEP yet to share here, but I did want to update that the meeting went really well and I think we'...

First off, quick note about yesterday. My daughter was pretty tired, and was having stomach aches off and on all day again. They were at sch...

Yesterday was a reminder of something we tend to struggle with - tummy troubles! One of the things that is so hard about EDS is that while y...

I can't believe that it has been almost a year now since we first saw our Geneticist and got the diagnosis of Ehlers - Danlos Syndrom...