tag:blogger.com,1999:blog-7755103340565042342.post4707895694594766256..comments2021-04-29T14:36:39.748-05:00Comments on Our Journey with Ehlers-Danlos Syndrome: Apparently my daughter is a lost cause...BugsMomhttp://www.blogger.com/profile/12782383329608796757noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7755103340565042342.post-67568542036979839142009-07-26T12:17:40.582-05:002009-07-26T12:17:40.582-05:00I've been in much the same position.
My back,...I've been in much the same position.<br /><br />My back, shoulders, and hips recover...but only so much. And then I'll re-injure them in the same way, but because I already had PT for that particular type of injury, I can't get another round of it. Drives me CRAZY!<br /><br />I get 60 calendar days to have PT per injury - usually ends up meaning about 16 sessions, which I'm sureAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7755103340565042342.post-24173285469822217362009-07-20T18:54:03.601-05:002009-07-20T18:54:03.601-05:00I have your blog in my reader. I have EDS as does...I have your blog in my reader. I have EDS as does my 19 year old daughter. My heart goes out to you. I understand the frustrations so so well, you have my empathy. The anger is natural but emotionally exhausting. Please keep posting it helps in some small way to share. Take care.Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-7755103340565042342.post-13760486038222309792009-07-15T13:39:16.335-05:002009-07-15T13:39:16.335-05:00hi there!! i have an EDS blog i thought you might ...hi there!! i have an EDS blog i thought you might be interested in following: http://DanielleDavisEDS.blogspot.com <br /><br />I am so sorry to hear about the insurance issues. I know all the drama with them - I went through it for years and just had to give up going to any PT or chiro or any other appts that they deemed not covered because they weren't showing improvement. improvement is Vegan Danielle Davishttps://www.blogger.com/profile/04975451419609335926noreply@blogger.comtag:blogger.com,1999:blog-7755103340565042342.post-51697727581607486702009-07-13T17:22:33.866-05:002009-07-13T17:22:33.866-05:00Bug's mom,
I wish I could give you a really bi...Bug's mom,<br />I wish I could give you a really big hug, and tell you to keep your chin up.<br /><br />All I can say is keep fighting, because it'a people like you that make this world a better place.<br /><br />So... *HUGS* to both you and Bug, just a light squeeze for Bug though, don't want to dislocate anything. Keep finding things that make you smile.<br /><br />BubbleGirlBubbleGirlhttps://www.blogger.com/profile/00932935674980101062noreply@blogger.comtag:blogger.com,1999:blog-7755103340565042342.post-26386850216251331332009-07-10T00:20:47.012-05:002009-07-10T00:20:47.012-05:00I hate to hear that she is going through this! I ...I hate to hear that she is going through this! I cannot imagine going through this at her age! I struggle to get through some days, and I am 18! My EDS didn't get really bad until I was almost 17! I always had dislocations and weak joints that I was in and out of PT for, but it didn't hold me back or prevent me from having a "normal" childhood.<br /><br />I see that Bug is aMackenziehttps://www.blogger.com/profile/08714456023271355846noreply@blogger.com