First of all, I want to say how happy I am that my online buddy Girl, Dislocated is back. I've missed her blog posts dearly! :)
Next up, I suppose I owe a couple of updates on Bug. She had a wonderful Christmas full of family and love. Ok, maybe she did get a bit spoiled. But you only live once, right??? LOL Her favorite gift this year was to the entire family, it was Rock Band 2 for Wii. I know I've posted before about how much I love the Wii, but I'm going to say it again, the Wii is AWESOME! It is just so great to be able to watch a child who is restricted from various activities be able to play them on the Wii. Rock Band 2 was worth every penny, it has brought her so much joy. She sings and plays the drums, and we can do it all as a family. The guitar is just too hard on her fingers, but that's ok, she just loves being able to hangout as a family and play. It's been great!!!
Now, health wise we have no real changes. She's been dairy-free since my last post (over a month now) and yes, her stomach problems are greatly reduced. In addition, I don't think she's missed any school at all during that month, which is wonderful. Historically winters are hard for her. I'm sooo thankful for all of this good news!
So - the other thing that is news is we just had our IEP meeting this week. Bug is still qualifying based on her physical therapy needs, but we no longer need OT servicing. I am happy about this, and everyone agreed she has made wonderful progress. We are going to continue to work with Dragon Naturally Speaking at home, but only so if/when we get to a point where she needs it we're prepared. They are starting to learn typing in the fall, and the plan is for her to give that a shot and see how she does. If she has joint problems then we'll adjust our plans accordingly. I really am hoping she can handle the typing, just because it's less noticeable to type on a laptop in class than it is to speak into a computer! :) But regardless, we'll make sure her needs are met.
We're tried of the cold, but making it through. I can't believe that it's only a couple more months until our second Arthritis Walk. Bug is so excited, she can't wait to go again! I love the fact that she is motivated and enjoys it so much. I know it makes me feel good to get out and do something about EDS.
That's about it for now!